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Valuable Voices,
     Powerful Stories

Valuable Voices,
     Powerful Stories

Improving Consumer Protection, Access, and the Overall Experience

At Families USA, we share a conviction that the people — a patient, consumer, or advocate — should be at the forefront of our mission to achieve improved health and health care for all. Our goal is to bring storytellers like you into the conversation, so policymakers better understand who we are advocating for, and why these changes are so important. You are the voice, the face, and the push behind the policy, and your story matters.

Securing and Expanding Comprehensive Coverage

People in every state deserve access to affordable, equitable, and comprehensive health coverage that meets their needs. But, too many people in America are falling through the cracks in our system, leaving them paying too much for too little care, or not able to afford any insurance at all. Choose a story below to learn more about coverage experiences.
Jessica Pineda: Fighting for Price Transparency While Her Symptoms Worsen

After a lymphoma diagnosis and a stint on Medicaid, Arizona resident Jessica Pineda thought she was back on track when she secured employer-sponsored coverage. But a surprise $1,250 facility fee forced her to cancel a procedure she urgently needs, leaving a cancer survivor with worsening symptoms and no clear path to care.

Read Jessica’s story
Andy Keith: Chronic Illness, Surprise Bills and the Fear of Losing Coverage

Andy Keith is a 26-year-old resident of Wichita, Kansas who depends on the Affordable Care Act (ACA) Marketplace to manage her complex medical conditions. As a teenager, she was diagnosed with two autoimmune diseases, Graves and Hashimoto’s, and a thyroid imbalance. Up until last year, Andy was covered by her parents’ private plan. Now, she has a marketplace plan that provides full coverage for her medical care.

Read Andy’s story
Hannah Bink: What Happens When a Broken Health Care System Collides With Real Life

Hannah Bink never expected to become a care coordinator, benefits navigator, and family mediator all at once. But as her grandparents’ health declined, that is exactly what she became.

Read Hannah’s story
More Securing and Expanding Comprehensive Coverage Stories

Supporting Health and Economic Security and Justice

Everyone in America should have the opportunity to live their healthiest life no matter who we are, where we are from, or where we live. Our current health care system does not make improved health for all its primary focus, particularly for Black and brown communities, immigrants, LGBTQ+ people, and other historically oppressed groups. Choose a story below to learn more about health equity experiences.
Tomeka James: A Mother’s Story of Loss, Survival, and Advocacy for Maternal Care

In 2017, Tomeka James Isaac was pregnant with her first and only son, Jace. At 40 years old, she was told early on that she would be at high risk for pre-eclampsia, yet despite this ominous warning, Tomeka’s pregnancy was progressing smoothly. Until, at her 35-week appointment, complications began.

Read Tomeka’s story
Kea Dupree: Honoring the Whole Person: Kea’s Birth Experience

Kea had a plan. Pregnant with her first child, she knew she wanted a natural birth, and she wanted her birth experience to be an experience that was unique to her. However, she felt dismissed by doctors when she made requests, and ignored at appointments. Kea switched to a birth center, and everything changed for the better.

Read Kea’s story
Tamara Hamilton: Challenges of COVID-19 Testing Criteria

Tamara's 18 month old grandson fell ill with a slight cough and signs mirroring COVID-19, but was not tested by his pediatrician. After his oxygen levels dropped, he was taken to the ER but was still not tested for COVID-19 due to not meeting testing criteria.

Read Tamara’s story

Advancing Affordability and High Value Care

As a nation, we spend over $4 trillion each year on health care, but our health and health care are not improving. More than half of Americans are worried about affording health care and a third are forced to choose between paying the rent check or the grocery bill, and their medical bills. We deserve better, higher-quality health care. Choose a story below to learn more health care value experiences.
Jessica Pineda: Fighting for Price Transparency While Her Symptoms Worsen

After a lymphoma diagnosis and a stint on Medicaid, Arizona resident Jessica Pineda thought she was back on track when she secured employer-sponsored coverage. But a surprise $1,250 facility fee forced her to cancel a procedure she urgently needs, leaving a cancer survivor with worsening symptoms and no clear path to care.

Read Jessica’s story
Wayne Riley: Rising Costs Lead to Impossible Choices

For two years, Wayne, a 56-year-old living in Colorado with his wife, relied on marketplace insurance to protect their health, and their finances. Their monthly premium of $690 was high but manageable. That all changed when Wayne, a self-employed commercial cleaner, contacted his insurance agent to ask about the upcoming year.

Read Wayne’s story
Lacy Marshall: Confronting the Hidden Costs of America’s Health Care

When Lacy Marshall’s daughter suffered a long seizure and was diagnosed with epilepsy, the family was quickly overwhelmed by insurance changes, denied imaging, and unexpected bills. Their experience pushed Lacy to speak out about how confusing and costly the system can be and help others navigate it.

Read Lacy’s story
More Advancing Affordability and High Value Care Stories