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Valuable Voices,
     Powerful Stories

Valuable Voices,
     Powerful Stories

Improving Consumer Protection, Access, and the Overall Experience

At Families USA, we share a conviction that the people — a patient, consumer, or advocate — should be at the forefront of our mission to achieve improved health and health care for all. Our goal is to bring storytellers like you into the conversation, so policymakers better understand who we are advocating for, and why these changes are so important. You are the voice, the face, and the push behind the policy, and your story matters.

Securing and Expanding Comprehensive Coverage

People in every state deserve access to affordable, equitable, and comprehensive health coverage that meets their needs. But, too many people in America are falling through the cracks in our system, leaving them paying too much for too little care, or not able to afford any insurance at all. Choose a story below to learn more about coverage experiences.
Darlene W.: A Retired Teacher Fears Losing the Coverage That Keeps Her Healthy

After more than three decades in the classroom, Darlene W. thought she had done everything right. She built a career teaching in a small rural public school in New York State, retired with a pension, and found affordable health care coverage through the Affordable Care Act (ACA) Marketplace. For the past two years, she’s relied on that coverage for peace of mind in retirement. But now, with federal subsidies under threat, that sense of security is unraveling.

Read Darlene’s story
ReShonda Young: Surviving Cancer With Help From ACA Tax Credits

ReShonda Young is a cancer survivor who accesses health care through the Affordable Care Act. With premium tax credits, her plan is $94 a month. But without them, her payment could skyrocket to $592 a month. She's asking Congress to think of people like her when considering changes or cuts to the program.

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Ashley James: Mental Health Care Shouldn’t Depend on Politics

Ashley James lives in Jefferson County, West Virginia with her husband who is a disabled veteran. Together they have ten children, and their youngest is 16 years old. She describes herself as a newly married wife and a working mother who depends on Medicaid to stay healthy and able to do her job.

Read Ashley’s story
More Securing and Expanding Comprehensive Coverage Stories

Supporting Health and Economic Security and Justice

Everyone in America should have the opportunity to live their healthiest life no matter who we are, where we are from, or where we live. Our current health care system does not make improved health for all its primary focus, particularly for Black and brown communities, immigrants, LGBTQ+ people, and other historically oppressed groups. Choose a story below to learn more about health equity experiences.
Tomeka James: A Mother’s Story of Loss, Survival, and Advocacy for Maternal Care

In 2017, Tomeka James Isaac was pregnant with her first and only son, Jace. At 40 years old, she was told early on that she would be at high risk for pre-eclampsia, yet despite this ominous warning, Tomeka’s pregnancy was progressing smoothly. Until, at her 35-week appointment, complications began.

Read Tomeka’s story
Kea Dupree: Honoring the Whole Person: Kea’s Birth Experience

Kea had a plan. Pregnant with her first child, she knew she wanted a natural birth, and she wanted her birth experience to be an experience that was unique to her. However, she felt dismissed by doctors when she made requests, and ignored at appointments. Kea switched to a birth center, and everything changed for the better.

Read Kea’s story
Tamara Hamilton: Challenges of COVID-19 Testing Criteria

Tamara's 18 month old grandson fell ill with a slight cough and signs mirroring COVID-19, but was not tested by his pediatrician. After his oxygen levels dropped, he was taken to the ER but was still not tested for COVID-19 due to not meeting testing criteria.

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Advancing Affordability and High Value Care

As a nation, we spend over $4 trillion each year on health care, but our health and health care are not improving. More than half of Americans are worried about affording health care and a third are forced to choose between paying the rent check or the grocery bill, and their medical bills. We deserve better, higher-quality health care. Choose a story below to learn more health care value experiences.
Amy Lynn Smith: Living Proof That the ACA Saves Lives

When the ACA Marketplace opened in the fall of 2013, Amy signed up for a plan that was exactly the same as the plan she’d bought directly through her insurance company. But instead of $1,400 a month, the same plan cost $530 a month, without the help of tax subsidies. Plus, it was even more robust than the original plan, including dental and vision coverage she’d never had before.

Read Amy’s story
Athena Joost: When the Right Medication Costs Too Much

Athena Joost, a 28-year-old nurse living in Oregon, knows firsthand how prescription drug prices can impact treatment options. Two years ago, she was diagnosed with Crohn’s disease, a chronic condition that can cause debilitating flare-ups. After initial treatments failed, her doctor recommended a biologic medication. Together, they decided on Stelara (Ustekinumab)

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Hanna Utkin: Shocked by Hidden Hospital Fees

When her four-month-old son fell from his highchair, Hanna Utkin rushed to the emergency room for help, only to later receive hundreds of dollars in unexpected “facility fees” for a visit that lasted just minutes. Her experience highlights how hidden hospital charges can leave families paying far more than they expect.

Read Hanna’s story