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Valuable Voices,
     Powerful Stories

Valuable Voices,
     Powerful Stories

People’s Experience

At Families USA, we share a conviction that the people — a patient, consumer, or advocate — should be at the forefront of our mission to achieve improved health and health care for all.

Our goal is to bring storytellers like you into the conversation, so policymakers better understand who we are advocating for, and why these changes are so important.

You are the voice, the face, and the push behind the policy, and your story matters.

Health Care Coverage

People in every state deserve access to affordable, equitable, and comprehensive health coverage that meets their needs. But, too many people in America are falling through the cracks in our system, leaving them paying too much for too little care, or not able to afford any insurance at all. Choose a story below to learn more about coverage experiences.
Whitney Lee: Fighting to Keep Health Care in a System Full of Barriers

Whitney Lee is a disability rights and mental health consultant in Utah who focuses specifically on autism. They participate in research studies on autism and suicide and have assisted researchers studying Medicaid recipients. Whitney has relied on Medicaid for about five or six years in addition to being covered under their parent’s insurance plan. Medicaid helps cover the remaining medical costs that would be over one hundred dollars or more.

Read Whitney’s story
Amy Johnstone: How ACA Premium Tax Credits Protect Families in Colorado

Amy Johnstone relies on the Affordable Care Act and its Premium Tax Credits to afford health insurance in one of the country’s most expensive markets. Without these subsidies, her medical expenses for a chronic condition could easily exceed her household income. Her story highlights how critical the ACA and tax credits are for ensuring access to health care.

Read Amy’s story
Les Rogers: Fighting for His Daughter and the Disability Community

When his daughter Gloria was born with complex medical needs, Leslie Rogers uprooted his life to fight for her survival. The family endured impossible choices, liquidating their savings and facing sleepless nights to keep her alive. Medicaid finally gave them stability, but with cuts looming and critical programs already shrinking, Leslie worries families like his could once again be pushed to the brink.

Read Leslie’s story
More Health Care Coverage Stories

Health Equity

Everyone in America should have the opportunity to live their healthiest life no matter who we are, where we are from, or where we live. Our current health care system does not make improved health for all its primary focus, particularly for Black and brown communities, immigrants, LGBTQ+ people, and other historically oppressed groups. Choose a story below to learn more about health equity experiences.
Tomeka James: A Mother’s Story of Loss, Survival, and Advocacy for Maternal Care

In 2017, Tomeka James Isaac was pregnant with her first and only son, Jace. At 40 years old, she was told early on that she would be at high risk for pre-eclampsia, yet despite this ominous warning, Tomeka’s pregnancy was progressing smoothly. Until, at her 35-week appointment, complications began.

Read Tomeka’s story
Kea Dupree: Honoring the Whole Person: Kea’s Birth Experience

Kea had a plan. Pregnant with her first child, she knew she wanted a natural birth, and she wanted her birth experience to be an experience that was unique to her. However, she felt dismissed by doctors when she made requests, and ignored at appointments. Kea switched to a birth center, and everything changed for the better.

Read Kea’s story
Tamara Hamilton: Challenges of COVID-19 Testing Criteria

Tamara's 18 month old grandson fell ill with a slight cough and signs mirroring COVID-19, but was not tested by his pediatrician. After his oxygen levels dropped, he was taken to the ER but was still not tested for COVID-19 due to not meeting testing criteria.

Read Tamara’s story

Health Care Value

As a nation, we spend over $4 trillion each year on health care, but our health and health care are not improving. More than half of Americans are worried about affording health care and a third are forced to choose between paying the rent check or the grocery bill, and their medical bills. We deserve better, higher-quality health care. Choose a story below to learn more health care value experiences.
Amber Bazile: A Daughter's Fight for Her Mother’s Dignity in Hospice Care

Amber Bazile was adopted at six weeks old by her parents, Margaret and Wayne Mimbs, and raised in Macon, Georgia, where she still resides today. Amber lost her mother, Margaret, in May of this year after months of mismanaged hospice care. Amber shared, "we believed she would be cared for with comfort and dignity, but that’s not what happened. The care was disjointed, neglectful, and inadequate."

Read Amber’s story
Les Rogers: Fighting for His Daughter and the Disability Community

When his daughter Gloria was born with complex medical needs, Leslie Rogers uprooted his life to fight for her survival. The family endured impossible choices, liquidating their savings and facing sleepless nights to keep her alive. Medicaid finally gave them stability, but with cuts looming and critical programs already shrinking, Leslie worries families like his could once again be pushed to the brink.

Read Leslie’s story
Kelly Fryman: Surviving on Samples, Praying They Don’t Run Out

Kelly Fryman, a 63-year-old woman living with diabetes in Florida, has spent years working to keep her condition under control. At first, Kelly managed her condition with medications such as Trulicity and Mounjaro. Eventually, she switched to Farziga because of cost, but even that became unaffordable. The only way she can stay on the medication is through free samples from her doctor.

Read Kelly’s story