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Valuable Voices,
     Powerful Stories

Valuable Voices,
     Powerful Stories

Improving Consumer Protection, Access, and the Overall Experience

At Families USA, we share a conviction that the people — a patient, consumer, or advocate — should be at the forefront of our mission to achieve improved health and health care for all. Our goal is to bring storytellers like you into the conversation, so policymakers better understand who we are advocating for, and why these changes are so important. You are the voice, the face, and the push behind the policy, and your story matters.

Securing and Expanding Comprehensive Coverage

People in every state deserve access to affordable, equitable, and comprehensive health coverage that meets their needs. But, too many people in America are falling through the cracks in our system, leaving them paying too much for too little care, or not able to afford any insurance at all. Choose a story below to learn more about coverage experiences.
Leo R: When Red Tape Stands Between a Mother and the Care She Needs

After years without proper monitoring of a known liver condition, Liliana Zelaya was diagnosed with advanced liver cancer in March 2025 — and then spent seven months waiting for treatment while her son Leo battled their Medicare Advantage insurer through failed authorizations, inaccurate network information and contradictory cost estimates. She died in January 2026 at 74.

Read Leo’s story
Michelle Fry: A Health Care Insider Navigating the System as a Patient

For more than 30 years, Michelle Fry worked in the health care system in Illinois. She built her career in primary care, dialysis and orthopedics, spending 24 years in orthopedics alone. Over that time, she shared she has “seen a lot of change in the medical field, mainly cost,” adding, “I think the cost is outrageous. I don't think it should be that expensive.” She saw how the system functioned behind the scenes. Now, as a patient, she is experiencing it for herself.

Read Michelle’s story
Maggie Sanchez: You Can't Weaken Medicaid Without Weakening Everything It Touches

Maggie Sanchez is a Medicaid beneficiary, a mother of a child with disabilities, and a caregiver for a loved one living with severe mental illness. When she talks about what proposed federal Medicaid cuts would mean, she is not speaking theoretically.

Read Maggie’s story
More Securing and Expanding Comprehensive Coverage Stories

Supporting Health and Economic Security and Justice

Everyone in America should have the opportunity to live their healthiest life no matter who we are, where we are from, or where we live. Our current health care system does not make improved health for all its primary focus, particularly for Black and brown communities, immigrants, LGBTQ+ people, and other historically oppressed groups. Choose a story below to learn more about health equity experiences.
Tomeka James: A Mother’s Story of Loss, Survival, and Advocacy for Maternal Care

In 2017, Tomeka James Isaac was pregnant with her first and only son, Jace. At 40 years old, she was told early on that she would be at high risk for pre-eclampsia, yet despite this ominous warning, Tomeka’s pregnancy was progressing smoothly. Until, at her 35-week appointment, complications began.

Read Tomeka’s story
Kea Dupree: Honoring the Whole Person: Kea’s Birth Experience

Kea had a plan. Pregnant with her first child, she knew she wanted a natural birth, and she wanted her birth experience to be an experience that was unique to her. However, she felt dismissed by doctors when she made requests, and ignored at appointments. Kea switched to a birth center, and everything changed for the better.

Read Kea’s story
Tamara Hamilton: Challenges of COVID-19 Testing Criteria

Tamara's 18 month old grandson fell ill with a slight cough and signs mirroring COVID-19, but was not tested by his pediatrician. After his oxygen levels dropped, he was taken to the ER but was still not tested for COVID-19 due to not meeting testing criteria.

Read Tamara’s story

Advancing Affordability and High Value Care

As a nation, we spend over $4 trillion each year on health care, but our health and health care are not improving. More than half of Americans are worried about affording health care and a third are forced to choose between paying the rent check or the grocery bill, and their medical bills. We deserve better, higher-quality health care. Choose a story below to learn more health care value experiences.
Susan Reabuck: When the Cost of Coverage Became a Matter of Life and Death

A Pennsylvania mother dropped her own health insurance to keep her husband and children covered — a decision that nearly cost her life when an untreated infection progressed to sepsis.

Read Susan’s story
Britney Lynn: When the Drug That Works is Just Out of Reach

Britney Lynn found a medication that worked to manage her diabetes — until her insurance stopped paying for it. Trying to manage her condition without access to the drugs she needs caused her to lose her job and can cost hundreds of dollars a month out-of-pocket, leading Britney to forgo care or use less effective medications with worse side-effects.

Read Britney’s story
Doretha "Dee" Burrell: From Breast Cancer Patient to Champion for Change

Dee Burrell was 50 years old when she was diagnosed with an aggressive form of breast cancer and spent three years in treatment — and while her health insurance helped, she quickly learned that even covered patients can fall through the cracks of America's broken health care system.

Read Doretha’s story
More Advancing Affordability and High Value Care Stories