Paul’s life has been defined by resilience. He grew up in a family of nine siblings. His father, a senior project manager in fluid mechanics at General Motors, worked until they wouldn’t let him anymore. Now in his late 60s, Paul still intends to work past 70. It is through the support of federal programs like Medicaid and Social Security that Paul has been able to continue working since he qualified for disability in 1994. But Paul’s access to Medicaid has not always been stable.
Read Paul’s storyAn Iowa resident, diagnosed with multiple sclerosis in 2007 at just 26 years old, Jennifer Marion's journey began with a terrifying symptom: sudden vision loss in her left eye. Though her sight eventually returned, MS has continued to shape her life in invisible but profound ways.
Read Jennifer’s storyKay Marcel lives in Urbandale, Iowa, where she and her husband have spent a lifetime ensuring their son Joel can live a full, safe, and meaningful life. Joel is 46 years old and has Down syndrome, along with several health conditions that require daily monitoring and consistent care.
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In 2017, Tomeka James Isaac was pregnant with her first and only son, Jace. At 40 years old, she was told early on that she would be at high risk for pre-eclampsia, yet despite this ominous warning, Tomeka’s pregnancy was progressing smoothly. Until, at her 35-week appointment, complications began.
Read Tomeka’s storyKea had a plan. Pregnant with her first child, she knew she wanted a natural birth, and she wanted her birth experience to be an experience that was unique to her. However, she felt dismissed by doctors when she made requests, and ignored at appointments. Kea switched to a birth center, and everything changed for the better.
Read Kea’s storyTamara's 18 month old grandson fell ill with a slight cough and signs mirroring COVID-19, but was not tested by his pediatrician. After his oxygen levels dropped, he was taken to the ER but was still not tested for COVID-19 due to not meeting testing criteria.
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Adrienne, a Pennsylvania resident and mother of two, never expected a simple diagnostic procedure to lead to over a year of financial and emotional distress. In February 2024, she underwent a thyroid biopsy at a hospital she knew well, the hospital where she gave birth to both of her children and one she visits frequently for appointments. Everything about the process felt routine—until the bill arrived.
Read Adrienne’s storyJim and Teresa Matthews never imagined that a hospital visit could unravel into a financial bureaucratic nightmare. When Teresa was hospitalized after a sudden episode of transient global amnesia—a rare, temporary loss of memory—they discovered a hidden flaw that left them with a $4,500 bill for a single day’s worth of medication and no clear path to challenge it.
Read Jim’s storyMorgan Barrett, a resident of Kansas, was diagnosed with cystic fibrosis (CF) at only seven years old. She and her two siblings have the same form of the disease, and growing up, they faced many serious health challenges.
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