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Valuable Voices,
     Powerful Stories

Valuable Voices,
     Powerful Stories

Improving Consumer Protection, Access, and the Overall Experience

At Families USA, we share a conviction that the people — a patient, consumer, or advocate — should be at the forefront of our mission to achieve improved health and health care for all. Our goal is to bring storytellers like you into the conversation, so policymakers better understand who we are advocating for, and why these changes are so important. You are the voice, the face, and the push behind the policy, and your story matters.

Securing and Expanding Comprehensive Coverage

People in every state deserve access to affordable, equitable, and comprehensive health coverage that meets their needs. But, too many people in America are falling through the cracks in our system, leaving them paying too much for too little care, or not able to afford any insurance at all. Choose a story below to learn more about coverage experiences.
Sara Goodrich: Balancing Self Employment and Soaring Health Care Costs

Sara Goodrich and her husband are both 44 and live in Maine. She works as a massage therapist, and he works as a carpenter. Because they are self-employed, they have relied on the Affordable Care Act for their health coverage for the last decade.

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Hillary Harris: What Medicaid Means for Families in Rural Missouri

Hillary Harris lives in Sikeston, Missouri with her three daughters, who are all under the age of ten. Medicaid has been absolutely crucial in providing her and her family what they need to stay safe and healthy, both mentally and physically.

Read Hillary’s story
Emma Brownstein: Why Work Reporting Requirements Would Put Her Health at Risk

Emma Brownstein has spent her entire life in Utah where she recently completed her undergraduate and master's degrees in game development at the University of Utah. Now, Emma is trying to navigate a challenging job market in the gaming industry. As someone who is neurodivergent and manages mental health challenges, Emma relies on consistent medical care and therapy to function. Fortunately, Medicaid was there to help.

Read Emma’s story
More Securing and Expanding Comprehensive Coverage Stories

Supporting Health and Economic Security and Justice

Everyone in America should have the opportunity to live their healthiest life no matter who we are, where we are from, or where we live. Our current health care system does not make improved health for all its primary focus, particularly for Black and brown communities, immigrants, LGBTQ+ people, and other historically oppressed groups. Choose a story below to learn more about health equity experiences.
Tomeka James: A Mother’s Story of Loss, Survival, and Advocacy for Maternal Care

In 2017, Tomeka James Isaac was pregnant with her first and only son, Jace. At 40 years old, she was told early on that she would be at high risk for pre-eclampsia, yet despite this ominous warning, Tomeka’s pregnancy was progressing smoothly. Until, at her 35-week appointment, complications began.

Read Tomeka’s story
Kea Dupree: Honoring the Whole Person: Kea’s Birth Experience

Kea had a plan. Pregnant with her first child, she knew she wanted a natural birth, and she wanted her birth experience to be an experience that was unique to her. However, she felt dismissed by doctors when she made requests, and ignored at appointments. Kea switched to a birth center, and everything changed for the better.

Read Kea’s story
Tamara Hamilton: Challenges of COVID-19 Testing Criteria

Tamara's 18 month old grandson fell ill with a slight cough and signs mirroring COVID-19, but was not tested by his pediatrician. After his oxygen levels dropped, he was taken to the ER but was still not tested for COVID-19 due to not meeting testing criteria.

Read Tamara’s story

Advancing Affordability and High Value Care

As a nation, we spend over $4 trillion each year on health care, but our health and health care are not improving. More than half of Americans are worried about affording health care and a third are forced to choose between paying the rent check or the grocery bill, and their medical bills. We deserve better, higher-quality health care. Choose a story below to learn more health care value experiences.
Danielle: A Mother Caught Off Guard by Rising Facility Fees

Danielle, a mother in West Virginia, has always done everything she can to keep her six-year-old son healthy. Born at 29 weeks and diagnosed with multiple disabilities, her son has relied on consistent, trusted care from the same pediatrician since leaving the NICU. For years, their visits were simple: a small copay, the care he needed, and no unexpected bills. That changed in 2024, when the pediatrician’s long-standing independent practice was taken over by WVUMedicine.

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Amy Lynn Smith: Living Proof That the ACA Saves Lives

When the ACA Marketplace opened in the fall of 2013, Amy signed up for a plan that was exactly the same as the plan she’d bought directly through her insurance company. But instead of $1,400 a month, the same plan cost $530 a month, without the help of tax subsidies. Plus, it was even more robust than the original plan, including dental and vision coverage she’d never had before.

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Athena Joost: When the Right Medication Costs Too Much

Athena Joost, a 28-year-old nurse living in Oregon, knows firsthand how prescription drug prices can impact treatment options. Two years ago, she was diagnosed with Crohn’s disease, a chronic condition that can cause debilitating flare-ups. After initial treatments failed, her doctor recommended a biologic medication. Together, they decided on Stelara (Ustekinumab)

Read Athena’s story