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Rx Drug Pricing

Athena Joost: When the Right Medication Costs Too Much

Card Image Athena Joost, a 28-year-old nurse living in Oregon, knows firsthand how prescription drug prices can impact treatment options. Two years ago, she was diagnosed with Crohn’s disease, a chronic condition that can cause debilitating flare-ups. After initial treatments failed, her doctor recommended a biologic medication. Together, they decided on Stelara (Ustekinumab)

Rx Drug Pricing

May: Facing the High Cost of Lifesaving Medication

Card Image May, a young woman from the Midwest, was diagnosed with a life-threatening pulmonary embolism and prescribed costly blood thinners to prevent another clot. Even with good employer-sponsored insurance, she faced staggering out-of-pocket costs—hundreds of dollars a month—for medication she needed to survive.

Rx Drug Pricing

Angel Melendez: Fighting for the Right Medication

Card Image For Angel, a 30-year-old living in Texas who has battled severe asthma since birth, that search led him through countless treatments before finally finding stability with Trelegy. Even though Trelegy worked, Angel’s insurer initially refused to cover it. Angel’s experience underscores how difficult it can be for patients with chronic conditions to access the medications that best manage their health.

Medicaid

Les Rogers: Fighting for His Daughter and the Disability Community

Card Image When his daughter Gloria was born with complex medical needs, Leslie Rogers uprooted his life to fight for her survival. The family endured impossible choices, liquidating their savings and facing sleepless nights to keep her alive. Medicaid finally gave them stability, but with cuts looming and critical programs already shrinking, Leslie worries families like his could once again be pushed to the brink.

Rx Drug Pricing

Kelly Fryman: Surviving on Samples, Praying They Don’t Run Out

Card Image Kelly Fryman, a 63-year-old woman living with diabetes in Florida, has spent years working to keep her condition under control. At first, Kelly managed her condition with medications such as Trulicity and Mounjaro. Eventually, she switched to Farziga because of cost, but even that became unaffordable. The only way she can stay on the medication is through free samples from her doctor.

Rx Drug Pricing

The Matthews Family: The $4,500 Pill: How a Hospital Visit Became a Financial Nightmare

Card Image Jim and Teresa Matthews never imagined that a hospital visit could unravel into a financial bureaucratic nightmare. When Teresa was hospitalized after a sudden episode of transient global amnesia—a rare, temporary loss of memory—they discovered a hidden flaw that left them with a $4,500 bill for a single day’s worth of medication and no clear path to challenge it.

Rx Drug Pricing

Bob Parant: A Lifetime of Advocacy and Resilience

Card Image Bob Parant has been living with type 1 diabetes for over 52 years. Diagnosed at 19 during what he calls the "dark ages" of diabetes care, Bob's journey has been one of perseverance, adaptation, and advocacy. At the time, diabetes management was rudimentary—urine testing provided little insight into actual blood sugar levels, and treatment relied on a strict diet and a single daily insulin injection.

Rx Drug Pricing

Robin C.: A Shock at the Pharmacy Counter

Card Image After finding out that she was diabetic in 2017, Robin had to learn very quickly how to treat her condition with insulin as she fought for her life in the hospital. But when she went to get her insulin from the pharmacy after switching to Medicare coverage, Robin was in for a massive shock at the pharmacy counter.

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