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Valuable Voices,
     Powerful Stories

Valuable Voices,
     Powerful Stories

Improving Consumer Protection, Access, and the Overall Experience

At Families USA, we share a conviction that the people — a patient, consumer, or advocate — should be at the forefront of our mission to achieve improved health and health care for all. Our goal is to bring storytellers like you into the conversation, so policymakers better understand who we are advocating for, and why these changes are so important. You are the voice, the face, and the push behind the policy, and your story matters.

Securing and Expanding Comprehensive Coverage

People in every state deserve access to affordable, equitable, and comprehensive health coverage that meets their needs. But, too many people in America are falling through the cracks in our system, leaving them paying too much for too little care, or not able to afford any insurance at all. Choose a story below to learn more about coverage experiences.
Ashley James: Mental Health Care Shouldn’t Depend on Politics

Ashley James lives in Jefferson County, West Virginia with her husband who is a disabled veteran. Together they have ten children, and their youngest is 16 years old. She describes herself as a newly married wife and a working mother who depends on Medicaid to stay healthy and able to do her job.

Read Ashley James,’s story
Sarah Allen: Independence Made Possible by Medicaid

In Princeton, West Virginia, Sarah Allen, who is blind, depends on Medicaid to afford the caregiving support that allows her to live independently. Her experience shows how critical caregivers are to people with disabilities and how low pay and undervaluing their work threaten the stability and dignity that programs like Medicaid make possible.

Read Sarah’s story
Cameo Sampson: How Medicaid Keeps Her Family Afloat

In Beckley, West Virginia, Cameo Sampson and her husband rely on Medicaid to cover the intensive therapies and medical care their 13-year-old daughter Evelyn needs to thrive. Proposed Medicaid cuts threaten to undo that stability, putting families like theirs at risk of financial ruin and forcing impossible choices about their children’s care.

Read Cameo’s story
More Securing and Expanding Comprehensive Coverage Stories

Supporting Health and Economic Security and Justice

Everyone in America should have the opportunity to live their healthiest life no matter who we are, where we are from, or where we live. Our current health care system does not make improved health for all its primary focus, particularly for Black and brown communities, immigrants, LGBTQ+ people, and other historically oppressed groups. Choose a story below to learn more about health equity experiences.
Tomeka James: A Mother’s Story of Loss, Survival, and Advocacy for Maternal Care

In 2017, Tomeka James Isaac was pregnant with her first and only son, Jace. At 40 years old, she was told early on that she would be at high risk for pre-eclampsia, yet despite this ominous warning, Tomeka’s pregnancy was progressing smoothly. Until, at her 35-week appointment, complications began.

Read Tomeka’s story
Kea Dupree: Honoring the Whole Person: Kea’s Birth Experience

Kea had a plan. Pregnant with her first child, she knew she wanted a natural birth, and she wanted her birth experience to be an experience that was unique to her. However, she felt dismissed by doctors when she made requests, and ignored at appointments. Kea switched to a birth center, and everything changed for the better.

Read Kea’s story
Tamara Hamilton: Challenges of COVID-19 Testing Criteria

Tamara's 18 month old grandson fell ill with a slight cough and signs mirroring COVID-19, but was not tested by his pediatrician. After his oxygen levels dropped, he was taken to the ER but was still not tested for COVID-19 due to not meeting testing criteria.

Read Tamara’s story

Advancing Affordability and High Value Care

As a nation, we spend over $4 trillion each year on health care, but our health and health care are not improving. More than half of Americans are worried about affording health care and a third are forced to choose between paying the rent check or the grocery bill, and their medical bills. We deserve better, higher-quality health care. Choose a story below to learn more health care value experiences.
Athena Joost: When the Right Medication Costs Too Much

Athena Joost, a 28-year-old nurse living in Oregon, knows firsthand how prescription drug prices can impact treatment options. Two years ago, she was diagnosed with Crohn’s disease, a chronic condition that can cause debilitating flare-ups. After initial treatments failed, her doctor recommended a biologic medication. Together, they decided on Stelara (Ustekinumab)

Read Athena’s story
Hanna Utkin: Shocked by Hidden Hospital Fees

When her four-month-old son fell from his highchair, Hanna Utkin rushed to the emergency room for help, only to later receive hundreds of dollars in unexpected “facility fees” for a visit that lasted just minutes. Her experience highlights how hidden hospital charges can leave families paying far more than they expect.

Read Hanna’s story
Delaine Dixon: The High Cost of Staying Healthy on a Fixed Income

At 61, Delaine Dixon of Texas relies on pain management after multiple spine surgeries, but recent insurance changes and hidden facility fees have made getting care nearly impossible. Living on Social Security, she now faces the impossible choice between paying hundreds in unexpected charges or going without the treatment she needs to manage her pain.

Read Delaine’s story