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Issue Brief
February 2016

Collecting Consumers’ Health Care Stories: What Enrollment Assistance Organizations Need to Know

By:
Cate Bonacini,
Elizabeth Hagan

This issue brief (PDF) outlines what enrollment assisters and organizations should know before collecting consumers’ health care stories and why collecting these stories can be a powerful tool for raising awareness and educating the public. A companion publication to our Story Bank Toolkit, this brief includes guidance about:

  • How to collect and share stories ethically
  • How collecting stories intersects with enrollment assistance
  • The two types of consent needed for enrollment assistance and collecting stories
  • How to introduce the topic of collecting stories

If your organization is interested in collecting people’s stories as part of your enrollment assistance work but you are hesitant because of strict rules around personally identifiable information (PII), this guide will help.