Long-Term Services and Supports:
AARP has a public policy institute, and long-term care is one of the topics that they cover. Search on "long-term care" to see AARP's latest reports on the topic.
Center for Personal Assistance Services is based at the University of California, San Francisco and funded by the National Institute on Disability and Rehabilitation Research, the U.S. Department of Education, and the Office of Special Education and Rehabilitative Services. The Center's Web site provides information on personal assistance services, including the range of services that are provided to individuals with disabilities or chronic illnesses to assist them in daily activities. The Web site also includes policy analysis, as well as information on state programs and workforce issues.
Clearinghouse for Home- and Community-Based Services provides comprehensive information on home- and community-based services. The project is staffed by faculty from Boston College.
Georgetown University Long Term Care Financing Project is a special project within Georgetown University to provide in-depth policy analysis about long-term care financing options.
Kaiser Family Foundation is a nonprofit foundation that conducts policy analysis on health care issues. They have reports and analysis on long-term care, particularly long-term care that is financed through the Medicaid program.
Leadership Council of Aging Organizations is a coalition of 56 nonprofit organizations that advocate for America's older population. Read their legislative agenda for long-term services here.
Mathematica Policy Research is a program evaluation and policy research consulting firm. Mathematica has issued several reports on long-term care and is evaluating the Money Follows the Person demonstration projects.
Medicaid.gov is an information hub managed by the Centers for Medicare and Medicaid Services to provide technical assistance, make information on state Medicaid programs and federal guidance easy to access, share best practices, and facilitate submission of comments on proposed changes to state Medicaid programs. The site also provides information for consumers about applying for coverage through Medicaid or the Children's Health Insurance Program, finding providers, and getting prescriptions drugs.
National Academy for State Health Policy is a multi-disciplinary forum of and for state health policy leaders from the executive and legislative branches of government. NASHP operates under the auspices of The Center for Health Policy Development. Long-term and chronic care is one of their issue areas.
National Association of Area Agencies on Aging (N4a) supports the national network of Area Agencies on Aging. The organization advocates on issues that affect the agencies, and for expansion of services for aging Americans.
The National Association of State Medicaid Directors is a bipartisan, professional, nonprofit organization of representatives of state Medicaid agencies (including the District of Columbia and the territories). The Web site includes recent papers and legislative alerts on policy issues affecting the Medicaid program.
National Citizen's Coalition for Nursing Home Reform is a consumer advocacy organization that works to improve life and quality of care for residents of nursing homes and other long-term care facilities.
National Council on Aging is a service and advocacy organization. Expanding access to affordable long-term services and supports is one of its issue areas.
National Family Caregivers Association provides caregivers with resources, conducts research on the value of caregiver contributions to health care systems, and advocates for policy that would better support caregivers.
National Health Law Program, Inc., better known as NHeLP, is a national public interest law firm that seeks to improve health care for America's working and unemployed poor, minorities, the elderly, and people with disabilities.
National Senior Citizens Law Center is a not-for-profit organization that works to promote the independence, dignity, and well-being of low-income elderly and disabled Americans, particularly women, people of color, and other minorities. They've published several policy papers that address issues related to long-term services.
NursingHomeAbuse.net exists to raise awareness of the growing nursing home abuse epidemic, to educate the public about its root causes, to help residents and their families prevent abuse, and to help victims cope with the consequences of nursing home abuse.
SCAN Foundation is a charitable foundation that focuses on advancing access to a continuum of care for seniors. The foundation's commissioned and supported works include policy and program analyses.
Urban Institute has published several papers on long-term services and supports. To find them, search under "long-term care."